Cerebral palsy is term that refers to a group of non-progressive but permanent disorders that affect co-ordination and movement. It may also involve problems with communication ability, perception and sensation.
The cause of the cerebral palsy is brain damage of the developing brain during childbirth or pregnancy. Coordination and muscle control is affected and any simple movement can be difficult. The good thing is it won’t get worse over time. The bad thing is it cannot be prevented.
Cerebral palsy cannot be cured but therapy, special equipment, treatment and sometimes surgery can help. Early intervention is vital for successful treatment. The sooner the condition is diagnosed, the better.
It’s not easy to cope with cerebral palsy and you need specialized assistance of a neurologist for treatment and deeper understanding of the condition. But parents are supposed to be the first to notice does not develop normally. As soon as you notice the child’s difficulties you should see Dr Bruce Rubinowicz. What to look for? You child might have trouble using his legs or arms, even stand up or perform simple, normal tasks.
But your child is not the only problem when you have to deal with cerebral palsy. You could experience a feeling that something of what you did was terribly wrong and your actions came with consequences for your child. Then you’ll have to face the ferocious couple of monsters of fear and guilt. Doctors and spouse could be the target of your anger too. The doctor might have delivered the baby wrong, your spouse maybe yelled at you or someone else delivered the trauma one way or another. Coping with this situation is emotionally tough and you should let go of the guilt and anger and focus on helping your child.
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Joining a support group is good idea as they can bring you in contact with people that might help you. Though cerebral palsy cannot be cured, the impact of the disorder can be minimized. Intensive one-on-one work with your child can help. You have a unique child with unique needs which you have to understand the best. The areas in which your child is deficient need close attention and you should do your best to help your kid bring the skills levels up.
There are many experts out there and sometimes their opinions might be contradictory. But you should know your child best, use you natural parent intuition and make the best choice. Sometimes you’ll have to learn by trial and error. But once you figure it out you’ll have to advocate for him to get the best he needs as you might need a team of experts to meet your child’s needs.
Many times you’ll have a tendency to overprotect your kid and you’ll have to resist that urge and allow your child to express himself. Also it’s a good idea to encourage your child to explore the environment and you should reward any small successes.
When you have a child with cerebral palsy you have 24/7 job so it’s a good idea to use respite care. Respite care givers can provide a break for you and you can deal with your own life while they take care of your child.
Coping with cerebral palsy is very difficult and you will need a whole team of specialized assistants to do it right.